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Date: Wednesday, April 07, 2010 - 9:00 am
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 Join ALS patients, family members, and advocates at the State House in Boston on Wednesday, April 7, for this incredibly important event. $150,000 of state funding for the ALS Registry has been included in previous budgets, however, this year the ALS Registry budget has been cut down to less than half of that. $150,000 is needed for the Registry to be done effectively and if funding continues to decrease, the project is at risk of suspension and we simply cannot allow that to happen. The state ALS Registry has had its funding decreased to an insufficient level, and we must fight for it! The ALS Registry allows for the identification of all cases of ALS in Massachusetts by the Department of Public Health. It will help researchers study both the incidence and prevalence of the disease, identify trends, and develop additional research studies related to better understanding the disease. In short, the ALS Registry in Massachusetts brings us one step closer to a cure. ALS Awareness Day is your chance to be heard! Please attend on April 7th, meet with your Senator and Representative, and be a voice for the entire ALS community! You can register online by clicking here. For more information, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it . The future of the state ALS Registry depends on you. Please join us on April 7th. |
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ALS Family Charitable Foundation, Inc., Buzzards Bay, Massachusetts
